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Participants

We started this journey in 2008 and the support from our participants has been tremendous!!

participants

More than 30,000 people from Nova Scotia, New Brunswick, Prince Edward Island, and Newfoundland and Labrador have participated in the Atlantic PATH Study.

Atlantic Canadians from Port aux Basques, NL to Ingonish, NS, Alma, NB, and Alberton, PEI, have shared information, as well as biological samples including blood, urine and saliva samples, toenail clippings and even their tap water.
We have created the Atlantic PATH Research Platform which holds this study data and biological samples.

 

Privacy

Protecting our participants’ privacy is our fundamental ethical obligation. We have made sure that all identifiable personal information, such as names, date of birth, complete address and contact information are kept separately from the study data and biological samples. A code number, only available to the Director of Information Technology, can link the identifying personal information to the study data and biological samples. Personal information is only accessed for administrative purposes, such as verifying mailing addresses for the Catch-up Questionnaire.

 

Consent

All our participants read, asked questions and clarifications, and gave consent before completing the questionnaires and giving biological samples.

Our participants have consented:

  1. For the Atlantic PATH Study to collect, store and access identifiable personal health information and biological samples from all sources in the Research Platform;
  2. For provincial health databases to disclose routinely collected personal health information to the Atlantic PATH Study for the next 30 years;
  3. For the Atlantic PATH Study to disclose de-identified personal health information for research to qualified Canadian and International Researchers and
  4. To be contacted for follow-up information and to take part in future research projects.

 

Enriching the Atlantic PATH Research Platform

Follow-up Questionnaire

We are rolling out a Catch-up Questionnaire. Please let us know if you would like to complete this online or have a paper copy sent to you by mail.

Linkage

As was planned from the start of the Atlantic PATH Study, we are adding information about participants that is routinely collected by your doctor, clinic and hospital visits and is stored in provincial databases.  This includes the provincial health insurance programs, cancer registries, vital statistics, and information from acute care hospitals in the Atlantic Provinces.

Please contact us if you would prefer that we do not add your routinely collected personal health information to the Research Platform.

More information about linkage is available here.

 

Withdrawal options:

Participation is completely voluntary and you may change your level of involvement with Atlantic PATH.

You may choose:

No further contact – We will not contact you for more information. The information that has already been given will continue to be included in future research projects.

No further use/complete withdrawal – We will destroy all information and biological samples that you provided and we will not contact you for more information.

Please contact us if you would like to change your level of involvement

 

 

Did you move, change your phone number, or switched email addresses?

Let us know! Being a 30 year study, It's important that we are able to stay in touch with our participants. Click here to update your information


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